{"id":30099,"date":"2025-04-10T09:45:45","date_gmt":"2025-04-10T09:45:45","guid":{"rendered":"https:\/\/confesq.org\/?p=30099"},"modified":"2025-04-14T09:23:41","modified_gmt":"2025-04-14T09:23:41","slug":"informe-de-repercusion-y-nota-de-prensa-12m-copy-copy-copy-copy-2-copy-copy-2","status":"publish","type":"post","link":"https:\/\/confesq.org\/?p=30099","title":{"rendered":"III Jornada de Educaci\u00f3n en Cuidados Paliativos: Cuesti\u00f3n de salud p\u00fablica. Enfermedades neurodegenerativas"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row][vc_column][vc_column_text]<\/p>\n<h3 style=\"text-align: center;\">III Jornada de Educaci\u00f3n en Cuidados Paliativos: Cuesti\u00f3n de salud p\u00fablica. Enfermedades neurodegenerativas<\/h3>\n<p>[\/vc_column_text][vc_single_image image=\u00bb30101&#8243; img_size=\u00bblarge\u00bb alignment=\u00bbcenter\u00bb][vc_separator][vc_column_text css=\u00bb.vc_custom_1744618300380{margin-right: 30px !important;margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\"><span style=\"color: #000000;\">Nos complace anunciar la participaci\u00f3n de <strong data-start=\"325\" data-end=\"336\">CONFESQ<\/strong> en la <strong data-start=\"343\" data-end=\"425\">III Jornada de Educaci\u00f3n en Cuidados Paliativos: una cuesti\u00f3n de salud p\u00fablica<\/strong>, organizada por <strong data-start=\"442\" data-end=\"495\">SECPAL &#8211; Sociedad Espa\u00f1ola de Cuidados Paliativos<\/strong>. <\/span><\/div>\n<div><\/div>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\"><span style=\"color: #000000;\">El evento tendr\u00e1 lugar el pr\u00f3ximo <strong data-start=\"531\" data-end=\"560\">lunes 28 de abril de 2025<\/strong>, en el <strong data-start=\"568\" data-end=\"602\">Auditorio CaixaForum de Madrid<\/strong>, y reunir\u00e1 a profesionales del \u00e1mbito sanitario, entidades sociales, asociaciones de pacientes y expertos en cuidados paliativos.<\/span><\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1744622323714{margin-right: 30px !important;margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\"><span style=\"color: #000000;\">CONFESQ participar\u00e1 en una <strong data-start=\"1209\" data-end=\"1302\">mesa dedicada a la Encefalomielitis Mi\u00e1lgica<\/strong>, bajo el liderazgo de <strong data-start=\"1353\" data-end=\"1385\">SFC-SQM Comunidad Valenciana<\/strong> y con la colaboraci\u00f3n de <strong data-start=\"1411\" data-end=\"1429\">SFC-SQM Madrid<\/strong>.<\/span><\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1744620338206{margin-right: 30px !important;margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\"><span style=\"color: #000000;\">Este espacio contar\u00e1 con la participaci\u00f3n de expertos en el \u00e1mbito y un v\u00eddeo con testimonios de pacientes:<\/span><\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1744620318213{margin-right: 30px !important;margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\">\n<ul>\n<li class=\"\" data-start=\"1500\" data-end=\"1602\">\n<p class=\"\" style=\"text-align: justify;\" data-start=\"1502\" data-end=\"1602\"><span style=\"color: #000000;\"><span style=\"text-decoration: underline;\"><strong data-start=\"1502\" data-end=\"1528\">Dr. Jos\u00e9 Alegre Mart\u00edn: <\/strong><\/span>Especialista en Medicina Interna. Coordinador cl\u00ednico y de investigaci\u00f3n del S\u00edndrome de Fatiga Cr\u00f3nica en la Unidad de S\u00edndromes de Sensibilizaci\u00f3n Central del Hospital Universitario Vall D\u2019Hebr\u00f3n de Barcelona. Integrante del Comit\u00e9 de S\u00edndromes de Sensibilizaci\u00f3n Central del Departamento de Salud de la Generalitat de Catalu\u00f1a. Miembro de la Red Europea del SFC, de la Asociaci\u00f3n Americana del SFC y de la Sociedad Espa\u00f1ola de S\u00edndromes de Sensibilizaci\u00f3n Central<\/span><\/p>\n<\/li>\n<li class=\"\" style=\"text-align: justify;\" data-start=\"1603\" data-end=\"1706\">\n<p class=\"\" data-start=\"1605\" data-end=\"1706\"><span style=\"color: #000000;\"><span style=\"text-decoration: underline;\"><strong data-start=\"1605\" data-end=\"1627\">Montserrat Alberdi<\/strong><\/span>, Jefa de la Unidad de Hospitalizaci\u00f3n a Domicilio (UHD) del Hospital San Juan de Alicante.<\/span><\/p>\n<\/li>\n<li class=\"\" data-start=\"1707\" data-end=\"1805\">\n<p class=\"\" style=\"text-align: justify;\" data-start=\"1709\" data-end=\"1805\"><span style=\"color: #000000;\"><span style=\"text-decoration: underline;\"><strong data-start=\"1709\" data-end=\"1733\">Isabel Calvo Sobrino<\/strong><\/span>, Licenciada en Ciencias Qu\u00edmicas. Afectada y presidenta de la Asociaci\u00f3n S\u00edndrome Fatiga Cr\u00f3nica y Sensibilidad Qu\u00edmica M\u00faltiple de la Comunidad Valenciana (SFC-SQM Valencia). Vocal de CONFESQ. <\/span><\/p>\n<\/li>\n<\/ul>\n<\/div>\n<p>[\/vc_column_text][vc_gallery type=\u00bbimage_grid\u00bb images=\u00bb30103,30108,30104&#8243; css=\u00bb.vc_custom_1744620589933{margin-left: 350px !important;}\u00bb][vc_column_text css=\u00bb.vc_custom_1744622386671{margin-right: 30px !important;margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\">\n<p class=\"\" data-start=\"1605\" data-end=\"1706\"><span style=\"color: #000000;\">Los ponentes abordar\u00e1n el impacto funcional de este s\u00edndrome, visibilizando la realidad de los pacientes con encefalomielitis mi\u00e1lgica severa, muchas veces invisibles para el sistema y sin acceso a los recursos necesarios para garantizar una m\u00ednima calidad de vida.<\/span><\/p>\n<\/div>\n<div class=\"styled-subtitle\" data-start=\"1807\" data-end=\"2093\"><\/div>\n<p>[\/vc_column_text][vc_single_image image=\u00bb30102&#8243; img_size=\u00bbfull\u00bb alignment=\u00bbcenter\u00bb]<div class=\"gem-button-container gem-button-position-center thegem-button-69f515b67ebfe4071    \"  ><a class=\"gem-button gem-button-size-large gem-button-style-flat gem-button-text-weight-normal\" data-ll-effect=\"drop-right-without-wrap\" style=\"border-radius: 3px;background-color: #30d3a2;\" onmouseleave=\"this.style.backgroundColor='#30d3a2';\" onmouseenter=\"\" href=\"https:\/\/www.secpal.org\/wp-content\/uploads\/2025\/04\/3-jornada-educacion-cuidados-paliativos-2025-programa-preliminar-web.pdf?fbclid=IwY2xjawJkXhpleHRuA2FlbQIxMAABHhmBR5ZzdQMYWI51RQiux4VLxWKDc1RA5K65DyLUPn937lpsWjFbzuuSG3QE_aem_W3g0MnMjJPsSK4RcJHr-sA\" target=\"_self\">Consulta el programa<\/a><\/div> [vc_separator][vc_column_text css=\u00bb.vc_custom_1744618162417{margin-right: 30px !important;margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\"><span style=\"color: #000000;\">Desde CONFESQ consideramos de gran relevancia esta jornada, que va a dar voz y visibilidad a un conjunto de casos dentro de nuestra comunidad que no solo han sido mal atendidos, sino muchas veces ignorados por el sistema sanitario. Casos que, por su nivel de gravedad y deterioro funcional, requerir\u00edan la intervenci\u00f3n de las unidades de cuidados paliativos.<\/span><\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1744620412332{margin-right: 30px !important;margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\"><span style=\"color: #000000;\">Os invitamos a participar y agradecemos profundamente a SECPAL por abrir este espacio, y a las entidades que lo han hecho posible desde la base: SFC-SQM Comunidad Valenciana y SFC-SQM Madrid, cuyo compromiso con los derechos de las personas con encefalomielitis mi\u00e1lgica ha sido clave en la organizaci\u00f3n de esta mesa.<\/span><\/div>\n<p>[\/vc_column_text]<div class=\"gem-button-container gem-button-position-center thegem-button-69f515b67ed3d5751    \"  ><a class=\"gem-button gem-button-size-large gem-button-style-flat gem-button-text-weight-normal\" data-ll-effect=\"drop-right-without-wrap\" style=\"border-radius: 3px;background-color: #30d3a2;\" onmouseleave=\"this.style.backgroundColor='#30d3a2';\" onmouseenter=\"\" href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLScA_hbhoqJ3i7CaqZcFdsXQV71bWVZZynZcbAPjxu4l6j6i-Q\/viewform\" target=\"_self\">Inscr\u00edbete<\/a><\/div> [vc_column_text css=\u00bb.vc_custom_1744615565123{margin-right: 30px !important;margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: center;\"><span style=\"color: #000000;\">\u00a1Bienvenidos a la III Jornada de Cuidados Paliativos: Cuesti\u00f3n de salud p\u00fablica. Enfermedades Neurodegenerativas!<\/span><\/div>\n<p>[\/vc_column_text][vc_single_image image=\u00bb30134&#8243; img_size=\u00bbfull\u00bb alignment=\u00bbcenter\u00bb][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][vc_column_text] III Jornada de Educaci\u00f3n en Cuidados Paliativos: Cuesti\u00f3n de salud p\u00fablica. Enfermedades neurodegenerativas [\/vc_column_text][vc_single_image image=\u00bb30101&#8243; img_size=\u00bblarge\u00bb alignment=\u00bbcenter\u00bb][vc_separator][vc_column_text css=\u00bb.vc_custom_1744618300380{margin-right: 30px&#8230;<\/p>\n","protected":false},"author":2,"featured_media":30101,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[105,17],"tags":[128],"class_list":{"0":"post-30099","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-novedades","8":"category-splash-creative-light","9":"tag-12mayo"},"menu_order":0,"_links":{"self":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/30099","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=30099"}],"version-history":[{"count":26,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/30099\/revisions"}],"predecessor-version":[{"id":30139,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/30099\/revisions\/30139"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/media\/30101"}],"wp:attachment":[{"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=30099"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=30099"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=30099"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}