{"id":29988,"date":"2025-02-10T08:21:52","date_gmt":"2025-02-10T08:21:52","guid":{"rendered":"https:\/\/confesq.org\/?p=29988"},"modified":"2025-02-10T09:52:15","modified_gmt":"2025-02-10T09:52:15","slug":"informe-de-repercusion-y-nota-de-prensa-12m-copy-copy-copy-copy-copy","status":"publish","type":"post","link":"https:\/\/confesq.org\/?p=29988","title":{"rendered":"Aportaciones para la inclusi\u00f3n de la Encefalomielitis Mi\u00e1lgica\/ S\u00edndrome de Fatiga Cr\u00f3nica (EM\/SFC) en la Ley 3\/2024"},"content":{"rendered":"

[vc_row][vc_column][vc_column_text]<\/p>\n

Aportaciones para la inclusi\u00f3n de la Encefalomielitis
\nMi\u00e1lgica\/ S\u00edndrome de Fatiga Cr\u00f3nica (EM\/SFC) en la
\nLey 3\/2024<\/h3>\n

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La Coalici\u00f3n Nacional de Entidades de Fibromialgia, Encefalomielitis Mi\u00e1lgica\/S\u00edndrome de Fatiga Cr\u00f3nica, Electrohipersensibilidad y Sensibilidad Qu\u00edmica M\u00faltiple (CONFESQ) ha presentado una propuesta para la inclusi\u00f3n de la Encefalomielitis Mi\u00e1lgica\/S\u00edndrome de Fatiga Cr\u00f3nica (EM\/SFC) en la Ley 3\/2024. Esta iniciativa busca reconocer la EM\/SFC como una enfermedad de alta complejidad y curso irreversible, especialmente en sus casos severos y muy severos, garantizando as\u00ed el acceso a recursos m\u00e9dicos, prestaciones econ\u00f3micas y apoyo social para los pacientes afectados.\u00a0<\/span><\/p>\n<\/div>\n

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En la redacci\u00f3n de la propuesta han participado tambi\u00e9n el Dr. Jos\u00e9 Alegre, especialista en SFC\/EM desde hace 25 a\u00f1os, la Asociaci\u00f3n Catalana de Afectados de Fibromialgia y Fatiga Cr\u00f3nica (ACAF)<\/strong><\/a> y la Plataforma Familiars fm-sfc-sqm<\/a>,<\/strong> quienes han aportado su conocimiento y experiencia para reforzar la necesidad de inclusi\u00f3n del EM\/SFC en la Ley 3\/2024. Han aportado los casos de pacientes las asociaciones SFC-SQM Madrid<\/a>, SFC-SQM Comunidad Valenciana<\/a><\/strong> y Federaci\u00f3n de Fibromialgia y S\u00edndrome de Fatiga Cr\u00f3nica de Castilla y Le\u00f3n (FFISCYL)<\/strong>, pertenecientes a CONFESQ. En conjunto representan a 21.000 afectados.\u00a0 Gracias a todos ellos por su participaci\u00f3n y compromiso<\/span><\/p>\n<\/div>\n

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Puedes leer aqu\u00ed la aportaci\u00f3n de consulta p\u00fablica elaborada por CONFESQ para la inclusi\u00f3n de la Encefalomielitis Mi\u00e1lgica\/S\u00edndrome de Fatiga Cr\u00f3nica (EM\/SFC) en la Ley 3\/2024 (Ley ELA)\u00a0<\/strong><\/a><\/p>\n<\/div>\n

[\/vc_column_text][vc_single_image image=\u00bb29990″ img_size=\u00bbmedium\u00bb alignment=\u00bbcenter\u00bb onclick=\u00bbcustom_link\u00bb link=\u00bbhttps:\/\/confesq.org\/wp-content\/uploads\/2025\/02\/LEY-ELA-ultima-FINAL-07_02-recortado.pdf\u00bb][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

[vc_row][vc_column][vc_column_text] Aportaciones para la inclusi\u00f3n de la Encefalomielitis Mi\u00e1lgica\/ S\u00edndrome de Fatiga Cr\u00f3nica (EM\/SFC) en la Ley 3\/2024 [\/vc_column_text][vc_single_image image=\u00bb29990″…<\/p>\n","protected":false},"author":2,"featured_media":29990,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[105],"tags":[128],"class_list":["post-29988","post","type-post","status-publish","format-standard","has-post-thumbnail","category-novedades","tag-12mayo"],"menu_order":0,"_links":{"self":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/29988","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=29988"}],"version-history":[{"count":6,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/29988\/revisions"}],"predecessor-version":[{"id":29996,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/29988\/revisions\/29996"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/media\/29990"}],"wp:attachment":[{"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=29988"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=29988"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=29988"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}