{"id":29807,"date":"2024-08-08T09:57:06","date_gmt":"2024-08-08T09:57:06","guid":{"rendered":"https:\/\/confesq.org\/?p=29807"},"modified":"2024-08-12T08:16:03","modified_gmt":"2024-08-12T08:16:03","slug":"entrevista-al-dr-chris-amstrong-copy-copy-2-copy-copy-copy-2-copy-copy-copy-copy-copy-2-copy-copy","status":"publish","type":"post","link":"https:\/\/confesq.org\/?p=29807","title":{"rendered":"D\u00eda Mundial de la Encefalomielitis Mi\u00e1lgica severa"},"content":{"rendered":"

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8 de agosto: D\u00eda Mundial de la Encefalomielitis Mi\u00e1lgica severa\u00a0<\/strong><\/p>\n<\/div>\n

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Este 8 de agosto<\/strong> celebramos el D\u00eda Mundial de la Encefalomielitis Mi\u00e1lgica Severa,<\/strong> una enfermedad neurol\u00f3gica y debilitante marcada por <\/span>fatiga extrema, dolor cr\u00f3nico, disfunci\u00f3n cognitiva y sensibilidad a la luz y el sonido, <\/strong><\/span><\/span>algunos afectados muy severos deben incluso recibir alimentaci\u00f3n por sonda. Necesitamos atenci\u00f3n m\u00e9dica adecuada e investigaci\u00f3n.<\/div>\n
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Para la campa\u00f1a hemos generado este post informativo<\/strong> con motivo de difundir y concienciar acerca de esta enfermedad:<\/div>\n<\/div>\n
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Tambi\u00e9n este hilo con con diferentes art\u00edculos, gu\u00edas y reactualizaciones sobre la EM\/SFC severa:<\/strong><\/div>\n
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\"📌\"<\/span>El a\u00f1o pasado 2023 un grupo de profesionales de la Cl\u00ednica Mayo y Universidad de Standford hizo esta revisi\u00f3n sobre el diagn\u00f3stico, evaluaci\u00f3n y tratamiento de la #EMS<\/a><\/span>FC. Disponible aqu\u00ed: https:\/\/www.mayoclinicproceedings.org\/article\/S0025-6196(23)00402-0\/fullte<\/a><\/span>xt<\/div>\n<\/div>\n
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\"📌\"<\/span>Tambi\u00e9n es muy interesante este informe acerca de la Calidad de vida relacionada con la salud en pacientes con encefalomielitis mi\u00e1lgica\/s\u00edndrome de fatiga cr\u00f3nica (EM\/SFC). Echa un vistazo aqu\u00ed \"👀\"<\/span>: https:\/\/journals.plos.org\/plosone\/article?id=10.1371\/journal.pone.0132421<\/a><\/span><\/div>\n<\/div>\n
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\"📌\"<\/span>\"📢\"<\/span> Este a\u00f1o se han revelado los esperados hallazgos de la Encuesta Pan-Europea de Pacientes con EM European ME Alliance<\/span><\/a><\/span><\/div>\n
La encuesta de m\u00e1s de 11,000 individuos muestra un panorama alarmante de negligencia y sufrimiento en toda Europa: https:\/\/www.europeanmealliance.org\/emea-pan-european…<\/a><\/span><\/div>\n<\/div>\n
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\"📌\"<\/span>Recomendamos consultar los nuevos avances<\/div>\n
Manuel Ruiz respecto a EM\/SFC. Uno de sus \u00faltimos art\u00edculos sobre la conexi\u00f3n entre Long Covid, #EM<\/a><\/span> y los s\u00edndromes post-vacunales.<\/div>\n
Disponible:\"👇\"<\/span> https:\/\/www.frontiersin.org\/…\/fimmu.2024.1422940\/full…<\/a><\/span><\/div>\n<\/div>\n
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\"📌\"<\/span>\"🔛\"<\/span>Otro enlace de inter\u00e9s para consultar los \u00faltimos informes y art\u00edculos publicados en este a\u00f1o aqu\u00ed:<\/div>\n
https:\/\/meassociation.org.uk\/…\/me-cfs-research…\/<\/a><\/span><\/div>\n<\/div>\n
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\"📌\"<\/span>Os dejamos este primer v\u00eddeo divulgativo del canal @Foropacientes dedicado al intercambio de informaci\u00f3n entre pacientes y profesionales sanitarios, primer v\u00eddeo:\"📹\"<\/span><\/div>\n<\/div>\n
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https:\/\/www.youtube.com\/watch?v=2Z5KB9-8yMM&t=603s<\/a><\/span><\/div>\n<\/div>\n
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\"📌\"<\/span>\"‼️\"<\/span> Importante: No olvides revisar las \u00faltimas gu\u00edas internacionales de consenso: https:\/\/confesq.org\/?p=28191<\/a><\/span><\/p>\n<\/div>\n<\/div>\n

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Consideramos \u00fatiles y pr\u00e1cticos los consejos sobre c\u00f3mo tratar al paciente con EM\/SFC severa que nos da la Doctora Eva Mart\u00edn.<\/a><\/div>\n

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Se han producido adem\u00e1s dos intervenciones en televisi\u00f3n, una de Castilla La Mancha<\/a> y otra de Salamanca<\/a>. Adem\u00e1s, Frida Navarra ha producido varios art\u00edculos, entre ellos, \u00abD\u00eda Mundial de la Encefalomielitis Mi\u00e1lgica Severa\u00bb<\/a>, disponible aqu\u00ed<\/a>.<\/div>\n

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Estos son algunos de los carteles que nuestras asociaciones han difundido:<\/div>\n

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Seguimos trabajando por m\u00e1s <\/span>investigaci\u00f3n y apoyo m\u00e9dico. #ApoyoEM\/SFC<\/strong><\/span><\/div>\n

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[vc_row][vc_column][vc_column_text] 8 de agosto: D\u00eda Mundial de la Encefalomielitis Mi\u00e1lgica severa\u00a0 [\/vc_column_text][vc_single_image image=\u00bb29809″ img_size=\u00bblarge\u00bb alignment=\u00bbcenter\u00bb][vc_column_text css=\u00bb.vc_custom_1723199598119{margin-right: 30px !important;margin-left: 30px !important;}\u00bb]…<\/p>\n","protected":false},"author":2,"featured_media":29809,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[105],"tags":[131],"class_list":["post-29807","post","type-post","status-publish","format-standard","has-post-thumbnail","category-novedades","tag-jornadas-fm-sfc-em-sqm-ehs"],"menu_order":0,"_links":{"self":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/29807","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=29807"}],"version-history":[{"count":10,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/29807\/revisions"}],"predecessor-version":[{"id":29838,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/29807\/revisions\/29838"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/media\/29809"}],"wp:attachment":[{"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=29807"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=29807"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=29807"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}