{"id":27996,"date":"2021-07-21T10:13:41","date_gmt":"2021-07-21T10:13:41","guid":{"rendered":"https:\/\/confederacionssc.es\/?p=27996"},"modified":"2021-07-21T10:18:23","modified_gmt":"2021-07-21T10:18:23","slug":"preguntas-de-emea-en-el-webinar-covid-and-the-diseases-represented-by-confesq","status":"publish","type":"post","link":"https:\/\/confesq.org\/?p=27996","title":{"rendered":"QUESTIONS FROM EMEA IN THE WEBINAR \u00abCOVID and the diseases represented by CONFESQ\u00bb"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row][vc_column][vc_column_text]<\/p>\n<h3 style=\"text-align: center;\">QUESTIONS FROM EMEA IN THE WEBINAR \u00abCOVID and the diseases represented by CONFESQ\u00bb<\/h3>\n<p>[\/vc_column_text][vc_single_image image=\u00bb27997&#8243; img_size=\u00bbfull\u00bb alignment=\u00bbcenter\u00bb][vc_row_inner][vc_column_inner width=\u00bb1\/2&#8243;][vc_column_text css=\u00bb.vc_custom_1626859939000{margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: center;\"><span style=\"text-decoration: underline;\"><strong>Preguntas de EMEA en el webinar \u00abCOVID y enfermedades representadas por CONFESQ\u00bb<\/strong><\/span><\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626860281870{margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">El pasado 27 de mayo y con motivo del d\u00eda mundial de Encefalomielitis Mi\u00e1lgica \/S\u00edndrome de Fatiga Cr\u00f3nica, Fibromialgia, Sensibilidad Qu\u00edmica M\u00faltiple y Electrohipersensibilidad, CONFESQ celebr\u00f3 la \u00faltima de un ciclo de conferencias para la concienciaci\u00f3n y puesta en conocimiento de estas 4 enfermedades. En esta ocasi\u00f3n, el tema del webinar era el \u201c<em>COVID y enfermedades representadas por CONFESQ<\/em>\u201d, en el que participaron m\u00e9dicos cl\u00ednicos conocedores de nuestras enfermedades, representando la medicina p\u00fablica y privada, y la atenci\u00f3n primaria y especializada: Dra. Ana M\u00aa Garc\u00eda Quintana, Dr. Javier Mateos y Dra. Julia Caballer.<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626860365404{margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">Adem\u00e1s, pudimos contar con la participaci\u00f3n de la organizaci\u00f3n europea de Encefalomielitis Mi\u00e1lgica m\u00e1s relevante, <span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.europeanmealliance.org\/index.shtml\">European ME Alliance<\/a><\/span> (EMEA), de la que es miembro CONFESQ.<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626861802599{margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">La directiva de EMEA, interesados por nuestras actividades programadas con motivo del 12 de mayo, nos hizo llegar unas preguntas relacionadas con la EM\/SFC y la COVID19. Las preguntas que nos enviaron fueron:<\/div>\n<div class=\"styled-subtitle\">\n<ul>\n<li style=\"text-align: justify;\"><strong>\u00bfQui\u00e9n asume la responsabilidad de los pacientes con Covid persistente? \u00bfQu\u00e9 especialidad se utiliza para la derivaci\u00f3n?<\/strong><\/li>\n<li style=\"text-align: justify;\"><strong>\u00bfExiste una v\u00eda especial de atenci\u00f3n para los pacientes con Covid persistente y en qu\u00e9 se diferencia de la de los pacientes con EM\/SFC?<\/strong><\/li>\n<li style=\"text-align: justify;\"><strong>\u00bfVe alguna diferencia entre los pacientes con Covid persistente y Encefalomielitis Mi\u00e1lgica? \u00bfY a cu\u00e1ntos pacientes con Covid persistente est\u00e1n tratando los m\u00e9dicos utilizando la experiencia obtenida con aquellos pacientes con EM\/SFC?\u00a0<\/strong><\/li>\n<li style=\"text-align: justify;\"><strong>\u00bfHa cambiado la percepci\u00f3n de EM\/SFC debido a las experiencias de tratamiento con pacientes con Covid persistente?\u00a0<\/strong><\/li>\n<li style=\"text-align: justify;\"><strong>\u00bfEspera ver un aumento en el n\u00famero de especialistas que tratan Covid persistente?\u00a0 \u00bfY esto se traducir\u00eda en un incremento de la mejora en el tratamiento de los pacientes con EM\/SFC?\u00a0<\/strong><\/li>\n<\/ul>\n<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626860849421{margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">Si quieres saber qu\u00e9 respondieron los doctores, pincha en el v\u00eddeo que se muestra a continuaci\u00f3n (espa\u00f1ol, subt\u00edtulos en ingl\u00e9s):<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626860902989{margin-left: 30px !important;}\u00bb]<\/p>\n<p style=\"text-align: center;\"><iframe title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/c09qPnXput0\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626860977393{margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">Actividades como esta, son de gran importancia porque no solo ayudan a mejorar la colaboraci\u00f3n entre entidades a nivel europeo, sino que tambi\u00e9n fomentan el conocimiento y experiencia de la Encefalomielitis Mi\u00e1lgica.<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626861032816{margin-left: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">Y s\u00ed a\u00fan no has visto el webinar completo puedes visualizarlo aqu\u00ed (espa\u00f1ol):<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626861151991{margin-left: 30px !important;}\u00bb]<\/p>\n<p style=\"text-align: center;\"><iframe title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/tnBmFXoKSL4\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00bb1\/2&#8243;][vc_column_text css=\u00bb.vc_custom_1626862219900{margin-right: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: center;\"><span style=\"text-decoration: underline;\"><strong>Questions from EMEA in the webinar \u00abCOVID and the diseases represented by CONFESQ\u00bb<\/strong><\/span><\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626861402236{margin-right: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">On May 27th and on the occasion of the world day of Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome, Fibromyalgia, Multiple Chemical Sensitivity and Electrohypersensitivity, CONFESQ held the last of a series of conferences to raise awareness and knowledge of these 4 diseases. On this occasion, the theme of the webinar was \u00abCOVID and the diseases represented by CONFESQ\u00bb, with the participation of clinicians knowledgeable about our diseases, representing public and private medicine, and primary and specialised care: Dr. Ana M\u00aa Garc\u00eda Quintana, Dr. Javier Mateos and Dr. Julia Caballer.<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626861537388{margin-right: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">In addition, we were able to count on the participation of the most relevant European organisation for Myalgic Encephalomyelitis, the <span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.europeanmealliance.org\/index.shtml\" target=\"_blank\" rel=\"noopener\">European ME Alliance<\/a><\/span> (EMEA), of which CONFESQ is a member.<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626861736531{margin-right: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">The EMEA board, interested in our activities planned for 12 May, sent us some questions related to ME\/CFS and COVID19. The questions they sent us were:<\/div>\n<ul>\n<li class=\"styled-subtitle\" style=\"text-align: justify;\"><strong>Who takes responsibility for Long Covid patients? What speciality is used\u00a0 for referral?<\/strong><\/li>\n<li class=\"styled-subtitle\" style=\"text-align: justify;\"><strong>Is there a care pathway for Long Covid patients and how is this different from ME patients?<\/strong><\/li>\n<li class=\"styled-subtitle\" style=\"text-align: justify;\"><strong>Do you see any differences between Long Covid and ME patients and how much are clinicians treating Long Covid using expertise gained from those treating ME?<\/strong><\/li>\n<li class=\"styled-subtitle\" style=\"text-align: justify;\"><strong>Has the perception of ME changed due to experiences of treating Long Covid patients?<\/strong><\/li>\n<li class=\"styled-subtitle\" style=\"text-align: justify;\"><strong>Do you expect to see a rise in the number of specialists treating Long Covid to rise and would there be an equal effort in treating ME patients?<\/strong><\/li>\n<\/ul>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626861885470{margin-right: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">If you want to know what the doctors answered, click here (English subtitles):<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626861948416{margin-right: 30px !important;}\u00bb]<\/p>\n<p style=\"text-align: center;\"><iframe title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/c09qPnXput0\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626862029385{margin-right: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">Activities like this are of great importance because they not only help to improve collaboration between organisations at the European level, but also promote the knowledge and experience of Myalgic Encephalomyelitis.<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626862071667{margin-right: 30px !important;}\u00bb]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">And if you haven&#8217;t seen the full webinar yet, you can watch it here (Spanish):<\/div>\n<p>[\/vc_column_text][vc_column_text css=\u00bb.vc_custom_1626862134579{margin-right: 30px !important;}\u00bb]<\/p>\n<p style=\"text-align: center;\"><iframe title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/tnBmFXoKSL4\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][vc_column_text] QUESTIONS FROM EMEA IN THE WEBINAR \u00abCOVID and the diseases represented by CONFESQ\u00bb [\/vc_column_text][vc_single_image image=\u00bb27997&#8243; img_size=\u00bbfull\u00bb alignment=\u00bbcenter\u00bb][vc_row_inner][vc_column_inner width=\u00bb1\/2&#8243;][vc_column_text css=\u00bb.vc_custom_1626859939000{margin-left:&#8230;<\/p>\n","protected":false},"author":2,"featured_media":27997,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[105],"tags":[],"class_list":{"0":"post-27996","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-novedades"},"menu_order":0,"_links":{"self":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/27996","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=27996"}],"version-history":[{"count":5,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/27996\/revisions"}],"predecessor-version":[{"id":28003,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/posts\/27996\/revisions\/28003"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/media\/27997"}],"wp:attachment":[{"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=27996"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=27996"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=27996"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}