{"id":25415,"date":"2018-09-24T10:21:30","date_gmt":"2018-09-24T10:21:30","guid":{"rendered":"http:\/\/confederacionssc.es\/?page_id=25415"},"modified":"2025-03-25T11:44:30","modified_gmt":"2025-03-25T11:44:30","slug":"meet-our-team-03-4-4","status":"publish","type":"page","link":"https:\/\/confesq.org\/?page_id=25415","title":{"rendered":"About us"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row css=\u00bb.vc_custom_1530698774481{margin-bottom: 0px !important;padding-bottom: 0px !important;}\u00bb el_class=\u00bbno-paddings\u00bb][vc_column][rev_slider_vc alias=\u00bbquienesomos\u00bb][\/vc_column][\/vc_row][vc_row full_width=\u00bbstretch_row_content\u00bb equal_height=\u00bbyes\u00bb css=\u00bb.vc_custom_1468838183811{margin-bottom: 0px !important;padding-bottom: 0px !important;}\u00bb el_class=\u00bbno-paddings\u00bb][vc_column css=\u00bb.vc_custom_1530698992229{padding-right: 65px !important;padding-left: 100px !important;background-color: #f0f3f2 !important;}\u00bb offset=\u00bbvc_col-lg-12 vc_col-md-1&#8243;][vc_text_separator title=\u00bbABOUT US\u00bb color=\u00bbcustom\u00bb css=\u00bb.vc_custom_1618411828535{background-color: rgba(234,234,234,0.02) !important;*background-color: rgb(234,234,234) !important;}\u00bb accent_color=\u00bb#b82551&#8243;][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">CONFESQ is the Spanish National Coalition of Fibromyalgia, Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome (ME\/CFS), Multiple Chemical Sensitivity and Electromagnetic Sensitivity. We are a non-profit association established in 2004, in which various national entities, regional federations and associations are registered and form part of CONFESQ. We represent more than 50 organizations.<\/div>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">Our aim is to defend the patients\u2019 rights and interests as well as their relatives. Our commitment goes beyond national boundaries, being our goal to be present before society, institutions, and any relevant administrations, integrating and promoting the actions of the entities it represents and those that pursue the same purposes.<\/div>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\">Currently, we are members of some national and international entities:<\/div>\n<p>[\/vc_column_text]<div class=\" gem-icon-with-title  gem-icon-with-title-icon-size-small\" ><div class=\"gem-icon-with-title-icon\"><div class=\"gem-icon gem-icon-pack-elegant gem-icon-size-small  gem-icon-shape-square gem-simple-icon \"  style=\"opacity: 1;\"><div class=\"gem-icon-inner\" style=\"\"><span class=\"gem-icon-half-1\" style=\"color: #b82551;\"><span class=\"back-angle\">&#x41;<\/span><\/span><span class=\"gem-icon-half-2\" style=\"color: #b82551;\"><span class=\"back-angle\">&#x41;<\/span><\/span><\/div><\/div><\/div><div class=\"gem-iconed-title\"><h5 style=\"\">National<\/h5><\/div><\/div>[vc_column_text]<\/p>\n<ul>\n<li>\n<div class=\"styled-subtitle\">Confederaci\u00f3n Espa\u00f1ola de Personas con Discapacidad F\u00edsica y Org\u00e1nica (COCEMFE):\u00a0Grupo de Trabajo (G.T.) de Salud,\u00a0G.T. de Discapacidad y G.T. de IRPF.<\/div>\n<\/li>\n<li>\n<div class=\"styled-subtitle\">Plataforma de Organizaciones de Pacientes (POP).<\/div>\n<\/li>\n<li>\n<div class=\"styled-subtitle\">Sociedad Espa\u00f1ola de Fibromialgia y S\u00edndrome de Fatiga Cr\u00f3nica (SEFIFAC).<\/div>\n<\/li>\n<\/ul>\n<p>[\/vc_column_text]<div class=\" gem-icon-with-title  gem-icon-with-title-icon-size-small\" ><div class=\"gem-icon-with-title-icon\"><div class=\"gem-icon gem-icon-pack-elegant gem-icon-size-small  gem-icon-shape-square gem-simple-icon \"  style=\"opacity: 1;\"><div class=\"gem-icon-inner\" style=\"\"><span class=\"gem-icon-half-1\" style=\"color: #b82551;\"><span class=\"back-angle\">&#x41;<\/span><\/span><span class=\"gem-icon-half-2\" style=\"color: #b82551;\"><span class=\"back-angle\">&#x41;<\/span><\/span><\/div><\/div><\/div><div class=\"gem-iconed-title\"><h5 style=\"\">International<\/h5><\/div><\/div>[vc_column_text]<\/p>\n<ul>\n<li>\n<div class=\"styled-subtitle\">Pain Alliance Europe (PAE).<\/div>\n<\/li>\n<li>\n<div class=\"styled-subtitle\">European Network of Fibromyalgia Associates (ENFA).<\/div>\n<\/li>\n<li>\n<div class=\"styled-subtitle\">Pain Mediterranean Coalition (PEC).<\/div>\n<\/li>\n<li>\n<div class=\"styled-subtitle\">European ME Alliance (EMEA).<\/div>\n<\/li>\n<\/ul>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">Moreover, we work in a daily basis on awareness- raising projects and initiatives whose only aim is to improve and enhance patients\u2019 quality of life.<\/div>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\">Some projects to highlight are:<\/div>\n<ul>\n<li style=\"text-align: justify;\">\n<div class=\"styled-subtitle\">Assistance to people with educational needs: such as the Personal Income Tax (PIT) subsidy project in 2017 which consisted in the creation and implementation of an educational protocol for children, teenagers and young people affected by these four diseases.<\/div>\n<\/li>\n<li>\n<div class=\"styled-subtitle\">Awareness-raising Campaigns:<\/div>\n<\/li>\n<\/ul>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"padding-left: 60px;\">&#8211;\u00a0Fundaci\u00f3n ONCE subsidy project 2017: \u201c<em>You do not see it, but we suffer<\/em>\u201d.<\/div>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<p style=\"padding-left: 60px;\"><iframe src=\"https:\/\/www.youtube.com\/embed\/zGPMXA_N0VE\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"padding-left: 60px;\">&#8211;\u00a0Fundaci\u00f3n ONCE subsidy project 2018: Training sessions on these four diseases.<\/div>\n<div class=\"styled-subtitle\" style=\"padding-left: 60px; text-align: justify;\">&#8211;\u00a0Project \u201cUNREST\u201d. Movie forum throughout Spain at universities, institutions\u2026 The different screenings were followed by a colloquium and several debates with the only aim was to raise awareness and inform about ME\/CFS.<\/div>\n<div class=\"styled-subtitle\" style=\"padding-left: 60px; text-align: justify;\">&#8211; #NoAlaGu\u00edaINSS, a patients empowerment project in which we provided additional research and investigation to stop a national social security guide regarding fibromyalgia, myalgic encephalomyelitis\/chronic fatigue syndrome (ME\/CFS), multiple chemical sensitivity and electromagnetic sensitivity in which we could find outdated and detrimental statements about the 4 diseases. That is why we prepared a position letter among other things in which we requested the withdrawal of the guide.<\/div>\n<p>[\/vc_column_text][vc_single_image image=\u00bb26370&#8243; img_size=\u00bblarge\u00bb alignment=\u00bbright\u00bb][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"padding-left: 60px;\">&#8211;\u00a0Strengthening the Associative Movement by incorporating new entities that contribute the development of new associative projects. We support them by providing them our resources for political, health and social demands.<\/div>\n<p>[\/vc_column_text]<div class=\"gem-icon-with-text gem-icon-with-text-icon-size-small\" ><div style=\"margin-bottom:0px;margin-top:0px; \" class=\"gem-icon-with-text-icon\"><div class=\"gem-icon gem-icon-pack-elegant gem-icon-size-small  gem-icon-shape-square gem-simple-icon \"  style=\"opacity: 1;\"><div class=\"gem-icon-inner\" style=\"\"><span class=\"gem-icon-half-1\" style=\"color: #b82551;\"><span class=\"back-angle\">&#x41;<\/span><\/span><span class=\"gem-icon-half-2\" style=\"color: #b82551;\"><span class=\"back-angle\">&#x41;<\/span><\/span><\/div><\/div><\/div><div class=\"gem-icon-with-text-content\" ><div class=\"gem-icon-with-text-text\">[vc_column_text]<\/p>\n<h5>GET TO KNOW US<\/h5>\n<p>[\/vc_column_text]<\/div><\/div><div class=\"clearboth\"><\/div><\/div>[vc_single_image image=\u00bb30060&#8243; img_size=\u00bblarge\u00bb alignment=\u00bbcenter\u00bb][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: center;\"><span class=\"letter-spacing\">Chairwoman: Mar\u00eda L\u00f3pez Matallana. SFC-SQM Madrid- presidencia@confesq.org<\/span><\/div>\n<div class=\"styled-subtitle\" style=\"text-align: center;\">Secretary: Anabel Tenorio. AMASC Mallorca &#8211; vocal3@confesq.org<\/div>\n<div class=\"styled-subtitle\" style=\"text-align: center;\"><span class=\"letter-spacing\">Treasurer: Jos\u00e9 Hurtado- tesoreria@confesq.org<\/span><\/div>\n<div class=\"styled-subtitle\" style=\"text-align: center;\"><span class=\"letter-spacing\">Chairperson: Isabel Calvo. SFC-SQM Comunidad Valenciana- vocal2@confesq.org <\/span><\/div>\n<div class=\"styled-subtitle\" style=\"text-align: center;\"><span class=\"letter-spacing\">Chairperson: Pilar Fern\u00e1ndez. <span class=\"OYPEnA text-decoration-none text-strikethrough-none\">FFISCYL<\/span><\/span><\/div>\n<div><\/div>\n<div class=\"styled-subtitle\" style=\"text-align: center;\">Comunication Management Coordinator: Irati Herrera Ros- webmaster@confesq.org<\/div>\n<p>[\/vc_column_text][vc_empty_space height=\u00bb20px\u00bb][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">\u201c<em>Advocating alone is tough. But there\u2019s power in numbers<\/em>\u201d. Union means strength, and we believe that leaving aside our differences will make our voices heard more loudly, clearly, and firmly.<\/div>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">For that, it is necessary to have an influence in policy and decision-making processes. We believe in joint cooperation programs with patients, families, professionals, political leaders, public and private entities and society in general; in order to promote training, awareness and collection of information. To improve patients\u2019 quality of life we consider essential to promote the importance and need for more research with greater support from public administrations as well as from international research agencies to back any research and development plans.<\/div>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\" style=\"text-align: justify;\">To continue working in the improvement of patients\u2019 quality of life, we dedicate our time in awareness-raising projects, promotion of information and investigation projects. For us, the development of scientific publications and studies as well as the improvement of the aetiology, diagnosis and treatment of Fibromyalgia, Myalgic Encephalomyelitis\/Chronic Fatigue Syndrome (ME\/CFS), Multiple Chemical Sensitivity and Electromagnetic Sensitivity are fundamental.<\/div>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\">We believe that growth is very important to meet even greater goals.<\/div>\n<p>[\/vc_column_text][vc_column_text]<\/p>\n<div class=\"styled-subtitle\">We are counting on you!<\/div>\n<p>[\/vc_column_text][vc_empty_space height=\u00bb20px\u00bb][\/vc_column][\/vc_row][vc_row][vc_column][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row css=\u00bb.vc_custom_1530698774481{margin-bottom: 0px !important;padding-bottom: 0px !important;}\u00bb el_class=\u00bbno-paddings\u00bb][vc_column][rev_slider_vc alias=\u00bbquienesomos\u00bb][\/vc_column][\/vc_row][vc_row full_width=\u00bbstretch_row_content\u00bb equal_height=\u00bbyes\u00bb css=\u00bb.vc_custom_1468838183811{margin-bottom: 0px !important;padding-bottom: 0px !important;}\u00bb el_class=\u00bbno-paddings\u00bb][vc_column css=\u00bb.vc_custom_1530698992229{padding-right: 65px !important;padding-left: 100px&#8230;<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-25415","page","type-page","status-publish"],"_links":{"self":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/pages\/25415","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=25415"}],"version-history":[{"count":24,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/pages\/25415\/revisions"}],"predecessor-version":[{"id":30061,"href":"https:\/\/confesq.org\/index.php?rest_route=\/wp\/v2\/pages\/25415\/revisions\/30061"}],"wp:attachment":[{"href":"https:\/\/confesq.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=25415"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}